Showing posts with label In the Name of Love. Show all posts
Showing posts with label In the Name of Love. Show all posts

September 18, 2009

Prayer & Chili's September 28th!

Hello!
I've written about my sister's friend's daughter Tess before. She's so close in age to Zach, and she is fighting a valiant battle against a rare cancer. Even after reading CaringBridge updates for nine months now, it's still hard to hear the words "4-year-old" and "cancer" in the same sentence. You'd think that some of that reality would have set in after all my college years involved with the Dance Marathon program, but I think some of it just doesn't hit home til you have your own four-year-old. And the fears become realities for you or your friends and family.

Tess is being treated through a clinical trial run out of St. Jude in Memphis, TN, though her family lives in Morton, IL, where I went to high school. It's amazing and uplifting to see how family and friends in town have come to the side of Tess's family, as they drive back and forth for chemo and testing and await Tess' stem cell harvest coming up soon.

Obviously, those of us far away cannot help her as much as we'd like, but there are few options. Prayer for Tess and her healing, for her sisters and brother who are also affected by the changes in their lives, for the doctors and care providers, for her parents and all who surround her.

Additionally, in the month of September, Chili's restaurants nationwide are donating a percentage of profits to St. Jude. All month long you can decorate a chili and make a donation, and know your $$ are being used to help a child fight cancer.

And, if you can get to a Chili's on September 28th, *100%* of the profits from that day will be donated to St. Jude. That is awesome. Don't you deserve a night out? In case you didn't know, St. Jude does not just help those within their hospital, but rather it shares all its research findings around the world and NEVER says no to a child who needs treatment, even if a family is not able to pay for the treatment. That is also awesome.

So, the 28th is Scott and my 7-year anniversary. I'm hoping we can get to Chili's. I bet Tess wishes she could be there, too.

March 27, 2009

Earth Hour 2009

Let's join the world in switching off our lights for an hour on Saturday, March 28th from 8:30p - 9:30p.

* This movement started in Sydney in 2007. Yet another reason Australia is SO cool.

February 16, 2009

Sandy & Roman in the NY Times!

Roman is permed! And has raised over $3000 - No, I just checked his website, over $4000! - for his friend who's battling a potentially paralyzing disease.

Nice work, Roman!

Check out The New York Times (Really?! Isn't that amazing?!) article: http://www.nytimes.com/2009/02/16/nyregion/16perm.html?_r=2&ref=nyregion

February 11, 2009

Roman Needs a Perm

Some of you know my friend and jewelry-maker extraordinaire, Sandy Hyun. One of the coolest chicks I know, and she's found herself an awesome, creative BF Roman, with a big heart and lots of hair.

Their friend Jenny is beginning a battle against cancer, and Roman is up to All Good. Check it out.

January 27, 2009

More Joy, Please

As we get older, so many of those stories we hear about "someone" become stories about "us" and "our friends and family." I love it when those stories are joyful. And my chest shrinks when they are not.

I'm writing about this now because I've heard another story that contains both joy and sorrow. Out of the sorrow has come joy, and I hope only that grows.

If you're one to pray, or send good thoughts, or whatever, would you send up a few for almost-four-year-old Tess and her family? She was diagnosed on Tuesday, January 20th with neuroblastoma. That Friday she had surgery to remove a tumor and a lymph node.
Joy: By Monday afternoon, Tess had recovered enough to go home with her sisters and brother.

Because cancer is also in her marrow, it's likely Tess and her parents will fly this weekend to have her marrow harvested (so it can be reintroduced later, after the bad marrow has been removed) and to begin a regimen of chemotherapy. That out-of-state stay will last several weeks.

Through all of this, Tess and her family will need all the support they can get.

It doesn't matter how Tess is connected to me, because all that matters is that hopefully now she will be connected to you, as you join the prayer chain for her recovery. (But if you're curious, she's the second daughter of one of my sister's best friends.)

After reading the Journal on Tess's Caring Bridge site, I felt compelled to spread the word of Tess' challenge. I don't believe it was just my need to type that moved me to do so.
Joy: I believe I'm part of Tess' little army now. Within the Journal, Spencer and Libby have eloquently chronicled their absolutely incredible week. Their strength and faith and graciousness are humbling.

Joy: It's amazing what we can do when put to the test, especially when we're surrounded by love and faith. I pray warmth will continue to wrap them, and to heal little Tess. And that the joy that is this warmth will continue to grow.

January 14, 2009

So Easy, Yet SO Worthwhile

I got this email from my sister Laura who works at the National Marrow Donor Program. The NMDP is a non-profit that coordinates marrow donation and transplant matching for patients and donors all over the world.

I'm so impressed with how much the company involves all their employees in the overarching mission of their company. Laura, fantastic number-cruncher and manager that she is, can speak quite eloquently about the technicalities involved in marrow and stem cell transplant processes. When some of my friends were involved in transplant red tape, she was able to provide information to contact real people for help. A friendly voice can go a long way in some of those times.

But, back to the company, I have to say it's invaluable that they keep their employees involved and interested by sharing success stories with them and making them feel a part of those successes. What better motivation and retention methods can there be than helping employees feel responsible for having saved a life?

Below is the email message Laura got. I hope you'll take a moment to read about the NMDP and maybe even consider registering as a donor. What a great, selfless way to start off the New Year.
Good Afternoon,

Thanks to the work you do, little boys like Matthew Welling overcome life-threatening diseases, donors like Steve Karas and Jill Goldsmith save lives, and corporate partners like Aflac encourage more than a thousand employees to join the NMDP Registry.

Today 3-year-old Matthew is thriving because of the generosity of Steve, an NMDP donor, and Jill, a Gift of Life donor.

And, a recent CNN news segment highlighted Matthew’s story with outstanding results. CNN has millions of TV and online viewers, including an average of one million unique online visitors each day. Within the first 24 hours:
· 65 TV stations picked up the story, carrying our message to a viewing audience of more than 1,151,997 viewers
· More than 10,000 visitors came to
www.marrow.org from CNN
· 344 individuals took the first step to joining the NMDP Registry by signing up online (on an average day, 21-35 sign up).
· Recruitment and Community Development and the Call Center experienced increased call volumes and responded to more than 70 e-mails submitted by visitors to marrow.org (a normal day brings about 30 such e-mails).

We are pleased to be collaborating with the Welling family and Aflac to help raise awareness of the opportunity to spread the word about our mission. By working together, our messages are stronger, our reach is greater and our results more effective.

If you haven’t had a chance to see this article, you can read Matthew’s story on CNN.com. We’ve also created a link from the News and Events section of insideNMDP. Please continue the momentum by sharing this compelling story with others through e-mail and social media sites and encourage more people to join the donor registry now.

January 07, 2009

Women - Amazing

Wow! I got this forward from a friend -thanks Becky!- and knew it was something that I had to share. I believe it's an excerpt from The Middle Place (has anyone read it? I'd like to), but I'm not certain. It is written by the same author, Kelly Corrigan.

I hope you will take a few minutes to listen and, I hope, enjoy this beautiful tribute to the bonds of women. I guess I'm still feeling The Love this New Year.
Thank you, all my female friends and family members! You are the best!

* Below is my attempt at a transcript, but I may have missed a few words, and it's so inspiring to hear it from the author, so listen first. *

Transcending
Words on Women and Strength
-Kelly Corrigan

I had one of those milestone birthdays a few months back. I tried to make a toast, something about my mom and her friends who call themselves the Pigeons. But I blew it.

There were once at least a dozen Pigeons, a self-effacing twist on “hens.” In the past few years, they lost two of the greats, Robin Birch and Mary Maroni, to cancer. On the Pigeons go, though, like women do, limping one minute, carrying someone the next.

They started in the 60s, in suburban Philadelphia, with bridge and tennis and Chardonnay…okay, vodka. And, over time, became something like a dedicated fleet, armed ships sailing together, weather be damned.

For me and women of my generation, it started with play dates, cutting carbs, and meeting on Monday mornings in workout clothes to do awkward moves with large, colorful balls. And I can see exactly where it’s heading:

We’ll confer about jog bras, and contractors and pediatricians.

We’ll gossip about babysitters, teachers and in-laws.

We’ll speculate about who had a shot of Botox, who cheats on their taxes, who cleans until midnight.

We’ll persuade each other to bake, fold, stuff and write checks for our favorite non-profits.

We’ll celebrate each other’s achievements, opening an exercise studio, a corner store, a jewelry business.

We’ll celebrate our kids’ achievements, making the traveling team, singing in the choir, learning to use the potty or speak French or play the flute.

We’ll borrow eggs, earrings, extra chairs.

We’ll throw birthday parties for each other and stain the rug and shatter the wine glasses and mark up new counters with the odd slice of lemon.

We’ll worry about who seems down, who looks tired, who’s drinking more and more.

We’ll say things we wish we hadn’t and have to find a way to regain each other’s trust. Things will break; they always do. Many will be fixed.

We’ll fret over our children, too shy, too angry, too needy. We’ll brainstorm ways to help them become more resilient, patient, light-hearted. We’ll protect them fiercely, pulling little bodies from the deep end, double latching windows, withholding car keys.

We’ll bury our mothers and fathers, shuttling our children off for sleepovers, jumping on red-eyes, telling each other stories that hurt to hear about gasping agonal breaths, hospice nurses, scars and bruises and scabs and how skin papers shortly after a person passes. We will nod in agreement that it is as much an honor to witness a person come into this world as it is to watch a person leave it.

People will drift in and out. Book clubs will swell and thin. We’ll write someone off, and they’ll reemerge later. And we’ll remember both why we loved them and why we let them slip away. But we’ll be softer, and we’ll want them back.

We’ll admire each other for a fine crème brule, a promotion, finished marathon. We’ll commiserate about commutes, layoffs, mortgage rates, and the High School Musical soundtrack.

We’ll confide in each other about feeling anxious or angry or uninteresting or about how many pieces of Halloween candy we accidentally ate from our kids’ bags. We’ll confess that we text while driving or that we should be having more sex or that we yell at our kids every day.

We’ll admit that we believe in God, Jesus Christ, Heaven and Hell. Or that we don’t.

We’ll give up things together, caffeine, Tylenol PM, catalogs, social smoking. We’ll take up things too, morning walks, hybrids, organic dairy, saying Grace.

We’ll diagnose each other’s brown lawns, torn muscles, basement odors. We’ll check each other’s heads for lice, examine new bumps and moles, and listen to a list of symptoms.

We’ll teach each other how to set a ring tone, make a slide show, or download a movie.

We will call and say, “I heard the news.” And whatever the news is, we will come running - probably with food. We will insist on second opinions, lots of rest, and the best surgeons. We will face diseases, many kinds, and we will temporarily lose our hair, our figures, and our minds.

Eventually, someone who’s not supposed to die will. Maybe one of us, maybe a husband, God forbid a child.

And all this celebrating and sharing and confessing will make certain essential comforts possible. We will rally around and hold each other up. And it won’t be nearly enough, but it will help the time pass, just a hair faster than it would have otherwise.

We will wait patiently and lovingly for that first laugh after the loss. When it comes, and it will come, we will cry as we howl, as we clutch, as we circle.

We will transcend, ladies, because we did all this.
In that worst moment,
we will transcend.

December 03, 2008

Charitable Giving

We've been talking about wanting to do some volunteering as a family. Mostly as a note to myself, below are some ideas listed in Colorado Parent magazine.

We're hopeful that giving time can help as much as giving resources. Some of the challenge will be to find a place or organization that will allow us all to participate in some fashion. Have you heard where they might need the assistance of a LittleCrazyGirl? Or a Yackety Zach? Before I saw this list, I thought maybe we could make cookies and sing carols for the folks at the assisted living center near us. I'd love to have helped with a dinner at the Ronald McDonald house too, but I don't think bringing our germies in there would be much help. We'll see.

  1. Brookdale Senior Living http://www.brookdaleliving.com/
  2. Dumb Friends League http://www.ddfl.org/
  3. Food Bank of the Rockies http://www.foodbankrockies.org/
  4. The Gathering Place http://www.the-gatheringplace.org/
  5. Goodwill Industries http://www.goodwill.org/
  6. Mercy Corp http://www.mercycorps.org/
  7. Metro Volunteers http://www.metrovolunteers.org/
  8. Sacred Heart House http://www.sacredhearthouse.org/
  9. Samaritan House http://www.samaritanhouse.com/

Some more ideas from CO Parent:

  1. Host a Potluck with a Purpose - Invite friends and neighbors to a potluck, and ask them to also bring a nonperishable food item and two personal care items. Deliver these to an agency in need.
  2. Hands-on Help - Volunteer at a local retirement community: set up movie hour, play board-games, or just visit residents. Make a "grand-friend."
  3. Mercy Kits - Make a global impact, sending out a mercy kit that fits your budget ($20, meals for children, $35 grow a garden, $40 help women start a business, $ 100 provide farmers with goats to suppport their families, all the way up to $1000) http://www.mercycorps.org/mercykits

Do you have any ideas? Places you've always wanted to, or have volunteered? Please post suggestions!

Love to you all this holiday season!

November 04, 2008

If not out of Civic Duty,

...then for a FREE cup of Starbucks coffee (or donut, or something else), but for goodness' sake, please just

GET OUT & VOTE!

July 15, 2008

Mothers

Mama Friends - you must pick up a copy of this book at the bookstore or library, let the kids enjoy books of their own, and settle in for a delicious read. My friend Theresa recommended it, and I can't love it more.

Someday by Alison McGhee (with absolutely beautiful illustrations by Peter H. Reynolds) is a treasured part of my library now.

Most of the book speaks to mothers of sons or daughters, but some thoughts are especially touching for mothers of daughters.
If you can't wait to get to the library, you can listen to the story as read by the author. Be warned, however. If you're even a little bit of a *sweet* sap, this may induce tears.

May 19, 2008

We Love You, Uncle Carlton!

Hugs and Prayers for you from Colorado!

May 05, 2008

Grow the Garden!

You can show your support by adding your name to the Marrow Donor Garden. In the right margin, under the number of Garden Supporters, click on the Grow the Garden link.

Enter your information and check the appropriate box(es):
- I support saving lives
- I joined the NMDP Registry to give patients hope.
- I donated cells for a marrow transplant to save a patient's life.
- I gave a financial gift to save lives.
- I am alive thanks to a marrow donor.
- I told my friends to get involved.
- I spread the word in memory of a loved one.
- I need a donor for myself (or someone I care about)

I bet everyone reading this post could say at least one of the above is true!

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